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Genetic Alliance transforms health through genetics, using an environment of openness centered on the health of individuals, families, and communities. Genetic Alliance brings together diverse stakeholders that create novel partnerships in advocacy; integrates individual, family, and community perspectives to improve health systems; and revolutionizes access to information to enable translation of research into services and individualized decision making.

Private Access, Inc, and Genetic Alliance, a 501(c)(3) organization, have formed a novel public-private partnership designed to simultaneously protect patients’ privacy rights while creating a faster and more cost effective way for researchers to connect with patients in order to find causes and treatments of chronic illnesses and diseases.  Both Private Access and Genetic Alliance believe that their combined efforts will help transform today’s medical research environment, saving time and money, producing better outcomes, and in a manner that respects each individual patient’s right to decide with whom they share their confidential health information. Read August 19, 2008 Announcement Now

Genetic Alliance

Recent News

Jul 27, 2015 CENA Approved for $1.2 Million in Second Phase of Development of PCORnet

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Jul 08, 2015 Genetic Alliance’s PEER Registry Recognized at White House Precision Medicine Initiative Event

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Jun 23, 2015 Claritas & Genetic Alliance Announce Partnership in Pediatric Rare Disease Research

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